My mum was an occupational therapist, and dealt with this kind of thing all the time. If you’ve not already done it, I would get in contact with your local council’s social services department to get an OT involved.
I think at least a part of it is that we are a minority among larger minorities I think (I don’t have the numbers for this), and a fractured one at that because needs are different among different disabled groups. Sometimes feel as if we aren’t a big enough group for people to be concerned about us having a voice.
That Lincoln episode XD I live on that hill, a few streets away. The struggle is real. How long ago did you film it? They’ve renovated the centre near the train station recently, think its better now for accessible stuff.
Mid January! We were quite frustrated as the city itself was mostly accessible, just not the incline of the hill
(We’re meant to be doing episodes in Milton Keynes, Watford and Oxford in the next 6 weeks but might have to cancel the last 2 because of £ issues.)
Ah that’s a shame. And yeah, Lincoln is just a bit of an unfortunate place to live if you need a wheelchair; the hill basically splits the city in half and you’d need to use a bus to get from one side to the other.
I guess it’s really complex.
I imagine there are far more disabled people than we think. A lot of people with e.g. a chronic illness, severe MH issues don’t think of themselves as disabled
I’ve worked on this kind of thing a few times, mainly from a design point of view (accessibility, designing for changing population, lifetime homes etc).
A lot of it does depend on how you define disability, because as you say many people wouldn’t think of themselves as such, even if in reality they are.
One of the other issues is that disabilities and a person’s needs change over time from person to person, especially if, as is very common, they have multiple intersecting health and welfare concerns. As people get older they’re more likely to have disabilities (50% of those over 65 is the commonly-cited stat, I think), obviously, but also there are many conditions that are relapsing/recurring on a day-to day basis.
There are guidelines in design that do seek to be inclusive of the most common physical disabilities, but there’s not really much in there for mental health aspects at the moment.
One of the most interesting areas of study that I’ve been involved with has been about designing for dementia and how buildings can increase their clarity and legibility, as well as making individual elements recognisable for those with cognitive issues.
The NHS is a great thing and underfunded etc etc but it’s really poorly set up for dealing with disabled people with multiple issues/specialists
this thread, yikesss America
It’s fucking frightening what successive governments are okay doing to disabled/differently abled people in the name of saving fractions of what they’re spending in fraud.and to think we’re not a patch on how disgusting the American system is.
Indeed. Read this earlier - I haven’t seen the programme but feel like I should watch it even though it will really bum me out.