Here’s a “funny” story after I got diagnosed with it.
I was in the consultants room at some posh private hospital that the NHS sent me to for some other stuff and was talking about Gilbert’s Syndrome, waffling on about it and how I thought it might be affecting me and then after talking about it the consultant went “hmmmm, yes, yes…it’s actually prononunced zheel-Bayr” and then just moved on to another topic! Hahahaha what a dick!! Dr Phonetics